The Huntington’s Disease Association (Auckland) Incorporated was formed in the early 80’s to provide support and for those living with Huntington’s Disease in Auckland. Our organisation was one of three that were set up through out New Zealand around the same time. Our aim is to maximise the quality of life of people living with HD by:
- Ensuring those who need it get the right support services and medical attention
- Enabling others to understand the disease
- Furthering research to manage and cure Huntington Disease
Our experts here in Auckland can guide you in your search for information and give advice that fits your personal situation. There are many websites about HD but they vary greatly in the quality of the information they provide. We recommend first seeking advice from a professional before embarking on a ‘google search’ because each person affected by HD experiences this differently. Everyone with HD is different in terms of when the symptoms start and which symptoms they will present with. Talk to us about what you would like to know.
We work to improve the quality of life for each family affected by HD. Our Family Liaison Coordinators help patients seek the right social and health services, and also guide other family members through counseling and genetic testing procedures. While there is no cure, the charity aims to help sufferers reach their maximum potential at each stage of the disease. For over 30 years we have been providing information about HD to those living with HD, their carers including support agencies and other medical professionals. Information ranges from how HD affects people to how to manage the symptoms.